Top 15 Lupus Blogs You Should Be Reading In 2016
Lupus occurs when something goes awry with your immune system and attacks healthy cells and tissues. When this occurs it can damage many parts of the body including blood vessels, kidneys, skin, joints, heart, lungs, and even the brain.
It is a very debilitating condition, but these bloggers have found a way to live with lupus AND share their journey along the way to inspire others. This is why we have named them, in no particular order, in our Top 15 Lupus Blogs You Should Be Reading In 2016 List.
Luck Fupus is a blog created by MarlaJan who suffers from lupus. Her blog shares her life story as she lives her life with lupus. We like her blog because she continues to survive and thrive in life despite her lupus diagnosis and you can feel the life in her through her writings and super fun blog.
Molly’s Fund Fighting Lupus is a nonprofit organization most especially dedicated to Molly, who is coping and living with lupus. Their mission is to educate the public and inform the medical community about lupus. They want those living with lupus to know that they are not alone, they here to support them and dedicated to making a difference.
The Lupus Liar is a blog created by Hetlena “J. H.” Johnson, who was diagnosed with Systemic Lupus Erythematosus, known unassumingly as Lupus, in early 1993. Not discouraged, J. H. completed her senior year of high school with honors. She continues to share her tidbits of her remarkable journey with Lupus on her blog and is the author of several books.
Sometimes, it is Lupus is a blog created by Iris Carden, a retired Uniting Church minister and a former journalist, in Australia. She was diagnosed with lupus in 2006. She created this blog to help and give practical advice to others who suffer from lupus.
Lupus Chick was created eight years ago by their Founder Marisa Zeppieri who was diagnosed with Systemic Lupus in 2001. Their mission is to empower younger generations living with Lupus and other invisible illnesses. One of their goals is to educate Lupus patients, their family members, friends, spouses and caregivers about all things Lupus.
Despite Lupus is a blog created by Sara Gorman, a native of Indiana and graduate of the University of Notre Dame. She was diagnosed with systemic lupus in 2001, at the age of 26. She shares her journey on her blog and has written a book detailing her experiences with lupus..
Lupus In Flight is a blog and was created by Shaista Tayabali. It became her lifeline when she was critically ill and also a place where she gathered all the disparate threads of an uneasy life of living with chronic illness. This blog teaches her how to be heard and how to be imaginative while living a solitary life.
Undefeated Diva was created by Christina Polanco, a fiery Latina that doesn’t take “no” for an answer. She was diagnosed with Lupus in March 2011 and have decided to kick it’s ass ever since. She is a warrior and created this blog to raise awareness against Lupus.
Flow on Lupus was created by Miz Flow, a 31 year old female with lupus. This blog discusses her ups, downs and everything in between with Lupus. In spite of the illness, she pushed her dreams with perseverance to finish her studies .
But You Don’t Look Sick was created by Christine Miserandino, an award-winning writer, blogger, speaker and lupus patient advocate. Christine is quoted and is listed as a reference in many books including CNN’s Elizabeth Cohen’s “The Empowered Patient”. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website.
She does it all: soulful singing, awesome spoken word poetry, lyrics for days. She was diagnosed with SLE Lupus in the summer of 2004. She wants to be a testimony to others that no matter what, faith and determination can accomplish any goal.
It’s hard to think of a health problem, like having Lupus, as an adventure, since an adventure could be confused with sounding like such a positive thing. But, the goal of this blog is to give awareness and information to people about lupus.
The Getting Closer to Myself blog was created by Leslie who suffers from lupus and rheumatoid arthritis. She was diagnosed in 2008. She hopes to help others through sharing her experiences with her illness. We like this blog because Leslie is relatable and sincere in her writings and by being completely transparent she helps others who have the illness.
CT Lupus is the blog of the Lupus Foundation of America Connecticut Chapter. The vision of the Lupus Foundation is to have a world without Lupus. The organization’s goal is to use science and medicine to find a cure for lupus. This blog shares everything lupus from recipes to advice from others who suffer with lupus.
Lupus and Humor was created by Carla Ulbrich, also known as the singing patient. Carla has had lupus for over 20 years and shares what helps and doesn’t when living with the chronic illness. She includes humor in her blog, a quality that has consistently been helpful to her throughout her illness.
Congratulations to all who were included in the list! If you know of a great Lupus blog that we missed, please send the name and a short description to robbie[at]healthlisted[dot]com.